2021 Stillbirth Diagnosis & Prevention Symposium - Full Video & Supplemental Materials

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A huge thank you to all of the Stillbirth Superheroes who helped us launch our mission to end preventable stillbirth on May 22, 2021 with the PUSH for Empowered Pregnancy Stillbirth Diagnosis & Prevention Symposium!

With your help, we were able to reach medical providers, maternal/fetal health advocates, loss families, policymakers, and others in every corner of the globe - literally! Check out this map of the Live Attendees:

Weren't able to join us live? Never fear! We've got you covered. :-)

Please find below the full recording of the event (English & Spanish subtitles available!) plus links to supplemental reading and resources recommended by each of our illustrious speakers.

VIDEO RECORDING

If you get an error that the video can't play on your mobile device, please click to view on YouTube instead (should work on any device): https://youtu.be/mxrUKUC1MaA

¡Disponible con subtítulos en español!

Thank you to Por El Arte Del Aprender for generously donating your translation services

SUPPLEMENTAL MATERIALS & REFERENCES

Thank you to our speakers for so generously donating your time and expertise to help share knowledge and raise awareness of stillbirth and the proven strategies for preventing this devastating pregnancy outcome.

Below are slides, references, and other resources recommended by our panel of experts from the 2021 PUSH for Empowered Pregnancy Stillbirth Diagnosis & Prevention Symposium, listed in order of appearance at the event.

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• The Vindicator Dr. Harvey Kliman, MD PhD Placental Pathologist at Yale

• The Ringleader Samantha Banerjee, Executive Director of PUSH for Empowered Pregnancy

• The Super Sleuth Dr. Marta Cohen, OBE MD FRC Path. DMJ (Pathol) Dip Med Ed Pediatric Pathologist, University of Sheffield

• The Magnetic Master Dr. Elspeth Whitby, PhD Fetal MRI Specialist & Researcher, University of Sheffield

• The Intrepid Investigator Beatrix Thompson, BA, Postgraduate Researcher in Maternal Fetal Medicine & Pregnancy Loss

• The Rainbow Defender Dr. Alex Heazell, MBChB(Hons) PhD MRCOG, Operator of the UK Rainbow Clinics & Director of the Tommy's Research Centre

• Guardian of Hope Dr. Kristen Sharp, MD, Founder of the Hope After Loss Clinic, University of Wisconsin-Madison

• The Trailblazer Dr. Heather Florescue, MD, First to Implement NHS Saving Babies Bundle Protocol in the US

• The Groundbreaker Dr. Patty Ng, MD, Founder of 1060 OBGYN & NYC's First "Rainbow Afternoons"

• Bringer of Rainbows Dr. Joanne Stone, MD MS, Director of Maternal Fetal Medicine at Mount Sinai & NYC's First Rainbow Clinic

• The Crusader Marny Smith, Agent of Change and Originator of the Ariadne Labs Saving Babies' Lives Stillbirth Prevention Pilot Program

• The Equity Champion Dr. Terri Major-Kincade, MD MPH FAAP, Neonatologist, Pediatrician, Perinatal Hospice Provider & Expert in Racial Health Disparities

• The Stopwatch Dr. Jim Nicholson, MD MSCE, Family Physician and Expert in Term (37+ week) Pregnancy Management

Dr. Harvey Kliman, MD PhD

Research Scientist & Director of Yale’s Reproductive and Placental Research Unit

harvey.kliman@yale.edu

• Symposium Highlights: Introduction ("It's Not the Mother's Fault"), Session ("Estimated Placental Volume to Prevent the Most Common Cause of Stillbirth")

• Website: klimanlabs.yale.edu (Pregnancy Loss)

• Further Reading on Estimated Placental Volume (EPV): www.measuretheplacenta.org (How to Measure, Research, Find a Provider)

• Instructions to have your baby's placenta reviewed by Dr. Kliman

Samantha Banerjee

Executive Director of PUSH for Empowered Pregnancy

samantha@pushpregnancy.org

• Symposium Highlights: Introduction ("Alana's Story")

• Recommended Resources for Perinatal Bereavement: Return to Zero: Hope (Virtual Support Groups, Webinars, Brochures), Unimaginable (Book) by Brooke Taylor, Glow in the Woods (Blog), An Unexpected Family Outing (Social Media), Samantha's Birth Story

• Recommended Resources for Pregnancy After Loss: Pregnancy After Loss Support, Count the Kicks Fetal Movement Tracking App, Different Baby, Different Story (Book) by Dr. Joann O'Leary, Lynnda Parker, Margaret Murphy & Dr. Jane Warland

Dr. Marta Cohen, OBE MD FRC Path. DMJ (Pathol) Dip Med Ed

Pediatric Pathologist, University of Sheffield

• Symposium Highlights: Session ("Undetected Fetal Growth Restriction")

• Website: sheffieldchildrens.nhs.uk/staff/marta-cohen

• Referenced Study: Classification of stillbirth by relevant condition at death (ReCoDe): population based cohort study by Gardosi et al (2005)

• Referenced Study: Preventing stillbirths through improved antenatal recognition of pregnancies at risk due to fetal growth restriction by Gardosi et al (2014)

• Referenced Study: Maternal and fetal risk factors for stillbirth: population based study by Gardosi et al (2013)

• Referenced Study: Results of full postmortem examination in a cohort of clinically unexplained stillbirths: undetected fetal growth restriction and placental insufficiency are prevalent findings by Blythe et al (2019)

Dr. Elspeth Whitby, PhD

Fetal MRI Specialist & Researcher, University of Sheffield

• Symposium Highlights: Session ("MRI to Detect Placental Insufficiency")

• Website: sheffield.ac.uk/medicine/people/oncology-metabolism/elspeth-whitby

Beatrix Thompson, BA

Postgraduate Researcher, Maternal Fetal Medicine Clinical Research, Yale School of Medicine

• Symposium Highlights: Session ("Causes of Stillbirth")

• Please see Dr. Harvey Kliman above

Dr. Alexander Heazell, MBChB(Hons) PhD MRCOG

Operator of the UK Rainbow Clinics & Director of the Tommy's Research Centre

Alexander.Heazell@manchester.ac.uk

• Symposium Highlights: Session ("UK Rainbow Clinics: Creation, Efficacy, Impact")

• Slide Deck (PDF): The Rainbow Clinic: creation, efficacy, impact

• Website: University of Manchester

• Referenced Study: Risk of recurrent stillbirth: systematic review and meta-analysis by Lamont et al (2015)

• Referenced Study: Parents’ experiences and expectations of care in pregnancy after stillbirth or neonatal death: a metasynthesis by Mills et al (2014)

• Referenced Study: Care in subsequent pregnancies following stillbirth: an international survey of parents by Wojcieszek et al (2016)

• Referenced Study: “Not just a normal mum”: a qualitative investigation of a support service for women who are pregnant subsequent to perinatal loss by Wojcieszek et al (2017)

• Referenced Study: No. 369-Management of Pregnancy Subsequent to Stillbirth by Ladhani et al (2018)

• Further Reading: The Rainbow Clinic (Tommy's)

Dr. Kristen Sharp, MD

Founder of the Hope After Loss Clinic, University of Wisconsin-Madison

• Symposium Highlights: Session ("Hope After Loss Clinic")

• Website: University of Wisconsin

• Brochure: Hope After Loss Clinic

Dr. Heather Florescue, MD

First OBGYN to Implement NHS Saving Babies Bundle Protocol in the US

• Symposium Highlights: Session ("First to Implement Int'l Prevention Protocols in the US")

• Referenced Protocols: NHS England Saving Babies' Lives Care Bundle

• Referenced Protocols: Australia Safer Baby Bundle

• Improving Care for Women Who Have Experienced Stillbirth – OBGYN News

• Decreased Fetal Movement: Time to Educate Patients and Ourselves – OBGYN News

• Video: It's Time to Solve the Puzzle of the Stagnant Stillbirth Rate in the US - The First Step is Standardizing Fetal Movement Education

• Recommended Patient Education Tool: Count the Kicks Posters

• Recommended Patient Education Tool: Count the Kicks Free Fetal Movement Tracking App

• Recommended Patient Education Tool: Safer Pregnancy Reminder Card

Dr. Patty Ng, MD

Founder of 1060 OBGYN & NYC's First "Rainbow Afternoons"

• Symposium Highlights: Session ("Caring for Loss Moms at NYC's First 'Rainbow Afternoons'")

• Website: www.1060obgyn.com

• Slide Deck (PDF): Challenges to Caring for Loss Moms

Dr. Joanne Stone, MD MS

Director of Maternal Fetal Medicine at Mount Sinai & NYC's First Rainbow Clinic

• Symposium Highlights: Session ("Bringing the First Rainbow Clinic to NYC")

• Website: mountsinai.org/profiles/joanne-stone

Marny Smith

Loss Mom Agent of Change and Originator of the Ariadne Labs Saving Babies' Lives Stillbirth Prevention Pilot Program

marny.smith@gmail.com

• Symposium Highlights: Session ("Loss Mom Agent of Change for the Ariadne Labs Prevention Pilot")

• Referenced Video: Dr. Catherine Calderwood "Reducing Stillbirth in Scotland - changing culture and practice, a success story"

• Referenced Protocols: NHS England Saving Babies' Lives Care Bundle

Dr. Terri Major-Kincade, MD MPH FAAP

Neonatologist, Pediatrician, Perinatal Hospice Provider & Expert in Racial Health Disparities

drterrimd@gmail.com

• Symposium Highlights: Session ("Systemic Racism is Killing Black Babies")

• Slide Deck (PDF): How Systemic Racism and Unconscious Bias lead to increased rates of Stillbirth for Black Women

• Website: www.drterrimd.com

• Referenced Study: Racial and Ethnic Disparities in United States: Stillbirth Rates: Trends, Risk Factors, and Research Needs by Hogue & Silver (2011)

• Referenced Study: Racial residential segregation and racial disparities in stillbirth in the United States by Williams et al (2018)

• Referenced Study: Do US Black Women Experience Stress-Related Accelerated Biological Aging? by Geronimus et al (2010)

• Referenced Study: “Weathering” and Age Patterns of Allostatic Load Scores Among Blacks and Whites in the United States by Geronimus et al (2006)

• Referenced Video: The Cliff of Good Health

• Further Reading: Beyond Health Care: The Role of Social Determinants in Promoting Health and Health Equity, Social Determinants of Health (SDOH), Zip Code & Life Expectancy, Perinatal Safe Spots

Dr. Jim Nicholson, MD MSCE

Family Physician and Expert in Term (37+ week) Pregnancy Management

• Symposium Highlights: Session ("Optimal Birth Timing & Challenges to Early Delivery")

• Website: wellspan.org/provider-search/profile/James-Nicholson-MD-Family-Medicine-Lebanon-PA/3261

• Research: AMOR-IPAT (Active Management of Pregnancy at Term)

Also don't miss the enlightening Q&A Session from the Symposium featuring all speakers above!

Questions about any of the above? Don't hesitate to reach out.

Fired up for change? Join us! We need your help to end preventable stillbirth.

#UnitedWePush For Families. For Babies. For Change.

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